I remember in the beginning I was heartbroken so much of the time...more because I didn't understand what Autism was...and I could not console Isaac. As we were enveloped in the Autism community I began to feel strong and hopeful. We started to see such incredible progress it was exciting. Even as a community we see awareness levels rising and Autism is spoke of in main stream social activities.
Then something happens like what happened in the Moreno Valley library that smacks a MAMA front and center in the face. It wasn't a huge ordeal, but the attitude from the librarians and security guard surprised me so much. Isaac found a corner while I was checking out the books and was spinning while looking up at the ceiling. It's just something he does. He wasn't upset or stressed, he just likes to spin. The security guard came up to me and told me that he was exhibiting "odd" behavior and needed me to watch him more carefully. WTHeck..OK..."Isaac, come stand by mommy." I turn back to the books.."Maam, you should wash your children's faces before you go out in public.." Isaac used a sharpie to draw a mustache on himself this afternoon and I've tried..believe me, I've tried. This time she just got a dirty look from me...Now I just ignored her.
We get all the way done and are out the door..BEEP BEEP BEEP!!! The detector beeped and the librarian yelled STOP!!! OK??? We turn around and the librarian yells to the guard, "THAT one went under the rope!!" pointing to Isaac...I say (in a very sarcastic way), "Lady! Here are the books and here is the receipt." She says, "It is very serious that your child walked under that rope!" She scolded Isaac very harshly and he started to cry. I rolled my eyes and walked out..
Ok here is my dilemma...I understand that we have to advocate and educate the world at large...we are expected to raise our families, struggle to pay for therapies, build up our marriages, encourage our other children...and HAVE TO EDUCATE STUPID PEOPLE!
I can also feel this overwhelming struggle when we deal with society as a whole...they present us with a box. It has certain dimensions and they expect every child to fit into it...then they throw drugs and discipline at both the kids and the parents to bend (even pop) joints out of place to fold inside the box....
I wholehearted admit that my children are weird (look at their parents). They are not like other kids. They are foolish, childish, playful, and expressive. They are not the kind of children to excel at one particular skill. When we walk into a place all together it can be kind of daunting.
But they know they are loved. They have experienced sand in their underwear and paint in their hair. They are free to make their own PBandJ and I've never cut up their apples (eat it whole or you get none). They have hammered real nails with real hammers. They have been read aloud to everyday of their lives. They have watched and journaled a pumpkin from seed to 20lbs. They have baked a cake and burned themselves with the glue gun.
SO we are weird you big fat world....but to be honest...I LIKE IT THAT WAY!